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Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 2000 to 2009

Lung Waiting List

Primary Diagnosis Year
2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Total Patients 5,138 5,370 5,396 5,544 5,645 5,267 4,798 4,675 4,117 4,175
Deaths 519 532 529 489 512 399 300 318 269 266
Rate 152.8 149.3 145.2 131.7 135.1 115.9 103.5 126.4 129.9 141.1
Emphysema/COPD Patients 1,610 1,644 1,586 1,632 1,597 1,447 1,318 1,309 1,159 1,153
Deaths 121 104 98 98 101 71 55 56 37 33
Rate 114.6 97.6 93.6 93.3 94.7 76.6 68.8 78.1 59.9 55.4
Cystic Fibrosis Patients 767 770 755 746 771 705 661 612 517 551
Deaths 105 99 87 79 80 69 35 55 44 40
Rate 210.3 190.5 168.6 155.6 155.7 146.0 84.8 149.8 152.7 163.1
Idiopathic Pulmonary Fibrosis Patients 731 830 919 1,010 1,057 979 929 1,002 980 1,039
Deaths 109 129 156 140 153 100 89 83 81 88
Rate 257.2 270.3 294.1 232.0 242.9 183.2 204.9 213.1 236.2 277.1
Alpha-1-Antitrypsin Deficiency Patients 278 296 290 284 270 248 211 197 161 165
Deaths 8 9 13 10 11 11 9 3 1 4
Rate 41.1 43.7 63.2 49.2 54.8 60.0 58.0 23.4 8.9 39.2
Idiopathic Pulmonary Arterial Hypertension Patients 501 546 516 531 527 493 414 356 236 222
Deaths 48 67 42 49 35 27 28 23 21 15
Rate 122.6 160.4 101.2 118.2 81.0 66.9 82.5 90.0 122.0 108.2
Retransplant/Graft Failure Patients 300 292 298 282 279 251 231 232 180 163
Deaths 29 26 32 21 32 26 19 30 25 28
Rate 149.0 137.5 174.2 116.2 206.4 204.2 191.5 330.2 369.8 499.2
Congenital Disease Patients 125 108 97 96 82 76 70 61 35 18
Deaths 11 10 10 9 4 3 3 3 - -
Rate 124.8 117.7 122.0 112.3 55.4 44.9 50.7 61.5 - -
Other Patients 826 883 934 963 1,062 1,068 964 906 849 864
Deaths 88 88 91 83 96 92 62 65 60 58
Rate 160.7 145.9 137.1 123.4 133.5 128.2 103.5 125.3 133.7 139.8
Unknown Patients - 1 1 - - - - - - -
Deaths - - - - - - - - - -
Rate - * * - - - - - - -


Source: OPTN/SRTR Data as of October 1, 2010.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31,

date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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