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Table 9.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 2000 to 2009

Liver Waiting List

Primary Diagnosis Year
2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Total Patients 23,366 25,483 26,086 25,655 26,305 26,545 26,660 26,471 26,370 25,912
Deaths 2,018 2,328 2,162 2,094 2,165 2,142 1,990 1,829 1,787 1,723
Rate 136.2 137.9 129.9 128.7 131.3 130.2 122.4 114.4 114.2 113.1
Non-Cholestatic Cirrhosis Patients 14,846 16,249 16,424 16,068 16,698 17,027 17,216 17,248 17,313 17,288
Deaths 1,354 1,555 1,356 1,327 1,419 1,440 1,297 1,226 1,198 1,161
Rate 140.3 142.1 125.2 124.5 130.4 130.8 117.8 112.1 110.9 108.8
Cholestatic Liver Disease/Cirrhosis Patients 2,362 2,452 2,527 2,471 2,451 2,406 2,403 2,321 2,194 2,148
Deaths 164 180 165 140 148 132 135 124 115 124
Rate 102.0 101.5 94.0 80.9 86.8 80.1 82.6 81.7 79.4 88.8
Acute Hepatic Necrosis Patients 1,406 1,482 1,529 1,428 1,420 1,367 1,268 1,222 1,093 1,043
Deaths 142 156 178 148 150 127 132 105 82 94
Rate 194.4 181.5 218.0 189.9 198.0 180.2 199.7 171.8 151.6 191.6
Biliary Atresia Patients 560 609 624 600 598 590 547 549 530 483
Deaths 23 33 23 16 11 18 20 14 16 12
Rate 67.3 82.9 59.1 40.3 28.8 49.6 59.4 44.5 55.4 49.6
Metabolic Diseases Patients 475 510 496 480 478 506 501 460 487 468
Deaths 34 28 40 38 44 36 38 29 33 19
Rate 119.2 87.1 130.6 141.5 164.4 127.2 146.7 116.6 136.9 81.1
Malignant Neoplasms Patients 345 428 517 523 640 751 865 968 1,215 1,372
Deaths 26 43 45 31 30 28 28 33 52 62
Rate 130.2 167.1 187.8 136.4 120.9 104.1 98.6 97.2 129.3 132.6
Other Patients 2,711 3,077 3,289 3,447 3,415 3,300 3,308 3,161 3,032 2,700
Deaths 233 282 303 334 317 305 290 257 247 206
Rate 147.2 149.6 159.1 180.1 167.1 165.4 163.0 147.1 150.9 135.7
Not Collected Patients 51 47 43 37 36 35 31 31 30 27
Deaths 4 4 1 1 1 1 - 1 1 1
Rate 83.5 90.0 25.8 27.5 28.9 30.4 - 32.8 34.5 40.6
Unknown Patients 610 629 637 601 569 563 521 511 476 383
Deaths 38 47 51 59 45 55 50 40 43 44
Rate 103.0 116.7 138.8 182.0 144.9 190.0 188.5 165.0 170.6 229.6


Source: OPTN/SRTR Data as of October 1, 2010.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31,

date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.